Several weeks ago in an excellent article, the New York
Times brought us personal narratives of parents whose lives have been touched
by Zika virus. Three families in Brazil were interviewed about how their lives
have changed since they had a child born with microcephaly. One mother has had
to come to terms with regular two hour bus rides to the city, she gets
governmental busing for her child’s appointments, but must walk 40 minutes each
way just to reserve her place on the bus. When she arrives at hospitals and
therapy sessions, she is sometimes met with wary questioning, as her daughter’s
disabilities are so profound that she still cannot track movement with her
eyes. She may soon be dropped from therapy, to make way for babies who have
better chances of making cognitive strides. The others had their own stories, and it's worth taking a few minutes to read the link below.
For me, the article made me pause to think about all the
different sources of knowledge and advice we get when it comes to Zika. Information
about this illness in terms of infection rates and transmission has increased
rapidly, but we know so little about long term effects of children born with Zika-
related disabilities. Where will we learn about them? Will the first generations
of babies born with microcephaly simply be guinea pigs? What about their
parents? Or will policymakers, caretakers and medical practitioners be able to
rise to keep up with these family growing and changing needs as Zika continues
its course.
Elisa Hofmeister ‘18
1 comment:
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